Our son Olly was diagnosed with Duchenne Muscular Dystrophy just after his second birthday, in 2014. DMD is a cruel muscle-wasting, life-shortening terminal condition for which at present there is no cure, with 100 boys a year born in the UK with DMD.
On average children with Duchenne may need a wheelchair by the time they’re 8-14 years old. By their mid-teens, some people with Duchenne will develop dilated cardiomyopathy. This condition affects the heart muscles, and life expectancy is around mid-20’s!!
We have set up ‘Olly’s Fund’ as a fund which will enable us to split the money raised 60/40 to do two things…
1) Raise funds for Olly, so we can give him and us fond, happy memories. Giving Olly the best opportunity to live life to the full and to ensure he receives the best possible care and equipment as he grows.
2) Raise funds for DMD Research. The Duchenne Breakthrough Fund with Muscular Dystrophy UK, funds world-class pioneering research into potential treatments and cures for people with muscular dystrophy and related neuromuscular conditions, from basic science and translational research to clinical pilot studies.
We will be arranging local fundraising events throughout which will be updated on here regularly.
Please help us any way you can, every penny counts. We need to find a cure!
Thank you so much for your support.
£909.92 raised for Olly's Fund!
*Please note, all donations made via PayPal will incur a small charge to Olly’s Fund. If you would like to donate using an alternate method please try our offline donation option or for more information please contact us.